I'm just one person, just two hands, just one heart. I have everything to offer.


This blog brings together resources and stories for other young caregivers and families dealing with the effects of Alzheimer's and the many OTHER forms of dementia including Dementia with Lewy Bodies, Creutzfeldt-Jakob Disease, Frontal Lobe Dementia, Huntington’s Disease , Parkinson’s Disease, Mild Cognitive Impairment, Wernicke-Korsakoff Syndrome, Mixed Dementia, Normal Pressure Hydrocephalus, Pick’s Disease and Vascular Dementia.


Wednesday, December 28, 2011

Save the Date for the 2012 Alzheimer's Advocacy Forum in Washington, D.C.



Registration Fees

Registration fees cover only a portion of the total meeting cost. The Association subsidizes the remainder.

Early bird by March 9 $175

ISTAART members $150
March 9 – April 13 $225

After April 13 and on-site registration $275

Monday only $100

Tuesday only $175

Wednesday only $50

Group Registration Policy and Procedures

For every three fully paid registrations from a group, one free registration will be offered. To qualify for group registration: One person from your group must register all four attendees online (no faxed or e-mailed forms). Group must register at the same time with payment to receive the discount. We will not cancel a pre-registered attendee to join a group registration. All group registrations must be entered at the same time to obtain the group discount.
Cancellation and refunds must be made in writing and must be postmarked, emailed (advocacyforum@alz.org) or faxed (866.699.1235) on or before March 8. All refund requests received by March 8 will be refunded, less a $35 processing fee. No refunds will be made for cancellations received after March 8. No refunds for no-shows.


Registration Methods

Fax

Fax registrations ONLY if payment will be made using a credit card. Do not fax group forms. Your email address must be included on the faxed form. Fax completed registration form to 886.699.1235.

Confirmations

Confirmation letters are sent by email. Please include the email address where you would like to receive the confirmation. Contact Darnella Harris at 312.335.5833 or advocacyforum@alz.org if you do not receive a confirmation.
Pre-Registration

Pre-registrations must be received by Friday, April 13, at 5 p.m. Central. After this time, anyone wishing to register must do so on site at the Advocacy Forum. See registration fee schedule.

Events at Registration

Please indicate on your registration form the meal functions and events you will be attending. All meals will be ticketed. If you wish to make a change to your registration, you may do so by calling 312.335.5833 before April 13 or visit the registration desk on site.

On-Site Registration Hours

Pre-registered attendees may pick up their conference materials, and on-site registrants may complete the registration process, during the following hours:


Monday, April 23 10 a.m.–6 p.m.

Tuesday, April 24 6:30 a.m.–5:30 p.m.

Substitutions

If you are unable to attend but would like to send another person in your place, please email the new information indicating it is a substitution to Darnella Harris at Darnella.Harris@alz.org

For More Information

For registration information, call 312.335.5833 or email advocacyforum@alz.org.


Thursday, December 15, 2011

Top 10: Holiday Advice for Caregivers and Other Caregiver News

We’ve been reading so much great advice for caregivers this holiday season, we felt it was worth a blog post just to highlight some of these informative articles. If you’re a caregiver to an aging friend or loved one, take a few minutes to read up on some useful tips that can help you travel your caregiving journey with ease.


1.Ryan Malone, of Inside Elder Care, never fails to impress with his expert insights. His latest blog post talks about the recent Gallup poll that really drills down caregiver statistics in the U.S. Some of them are not surprising, but some will be shocked to learn just how many folks are caring for a loved one these days — and the level of sacrifice they make each day in order to do so.

2.Registered nurse, former caregiver (for her father), current long-distance caregiver (for her mother) and our friend (we’re proud to say!), Shelley Webb of Intentional Caregiver, gives us 11 New Year’s resolutions caregivers can make this holiday season in a guest post for Maturity Matters.

3.If you’re planning to move a loved one in the near future, check out these ten tips from AARP. And for more awesomeness from AARP, read this post if you have a caregiver on your shopping list this holiday season for some excellent caregiver gift ideas. Thinking cruises and spa getaways? Think again: an empathetic ear, a little help. You know, those intangibles that are far more valuable than expensive gifts!

4.Montgomery Media offers tips for caregivers to de-stress this holiday season. Top of the list? Don’t forget to take care of yourself, so you can provide better care for your loved one. We’ve heard it many times, but caregivers get so caught up in caring for loved ones they easily forget this very important task.

5.Tax season is rapidly approaching, and Forbes has some information on tax breaks to help caregivers ease the financial burden.

6.American Medical News talks about how technology can connect doctors and caregivers. Easy communication is critical between the two, as caregivers must stay in control of their loved one’s care needs.

7.The San Francisco Chronicle features a press release covering a new approach to caregiving for the Alzheimer’s/dementia patient. The Pines Education Institute of S.W. Florida partnered with Teepa Snow, a nationally-recognized dementia care expert, to produce a series of educational DVDs to aid caregivers.

8.MSN takes a humorous approach to identifying the signs of Alzheimer’s disease with “7 Signs Santa Has Alzheimer’s.” This light-hearted approach excellently conveys critical signs caregivers and loved ones should look out for, especially if visiting a long-distance aging loved one over the holidays.

9.The holidays are supposed to be a joyous time, yet many aging and disabled adults find themselves with a case of the holiday blues. If your loved one is having a difficult time this holiday season, check out these tips from Care.com to help.

10.La Mesa Courier features a great list of tips for making this holiday season a joyous one for your aging loved ones. Try cooking a special meal together, listening to their stories from the past or taking a nostalgic ride around town.