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This blog brings together resources and stories for other young caregivers and families dealing with the effects of Alzheimer's and the many OTHER forms of dementia including Dementia with Lewy Bodies, Creutzfeldt-Jakob Disease, Frontal Lobe Dementia, Huntington’s Disease , Parkinson’s Disease, Mild Cognitive Impairment, Wernicke-Korsakoff Syndrome, Mixed Dementia, Normal Pressure Hydrocephalus, Pick’s Disease and Vascular Dementia.


Friday, September 21, 2012

Letter to the Editor



As a caregiver for my mother who died from Alzheimer’s disease, and as a facilitator of an Alzheimer’s support group, I want to say thank you to Congressman Trent Franks.  On Tuesday, August 14, he became a co-sponsor of H.B. 1386, the HOPE for Alzheimer’s Act.  The HOPE Act is in the House subcommittee on Health awaiting action to bring it to a floor vote.  Congressman Franks’ actions will help this process.

The HOPE for Alzheimer’s Act will improve diagnosis of Alzheimer’s disease, increase access to information, care and support for newly diagnosed individuals and their families, and ensure the diagnosis is documented in the person’s medical record, which will help prevent potential complications in the care of other medical conditions.

The passage of this bill will add a small ray of help to a disease path that needs all the help it can get.

Ernie Otto
Peoria, AZ

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